Central Leader : November 26th 2010
www.centralleader.co.nz Friday, November 26, 2010 WE WANT YOU Please help us to help the National Burn Centre. Text HEAL to 4740 to donate $3. OPERATION THE MAD BUTCHER AND SUBURBAN NEWSPAPERS TRUST COMMUNITY Sir Peter Charles Leitch KNZM, QSM. Chairman, The Mad Butcher and Suburban Newspapers Community Trust Positive approach: Leanne Knox has found a novel way to raise money in the fight against Huntington's disease. The Mt Eden resident is holding a fundraising dinner on what was going to be her wedding day. Photo: JASON OXENHAM An extraordinary idea By HANNAH SPYKSMA FROM reception venue to a charity banquet -- the wed- ding plans of Leanne Knox have changed dramatically. The date was already booked when the Mt Eden resident s engagement ended unexpectedly. But six weeks ago she decided she would rather raise money to fight a disease that is killing several members of her family than let her wedding venue go to waste. I was walking up Mt Eden one evening thinking about a recent church sermon and I just thought: How can I be extraordinary? In that moment, it came to me, she says. So instead of the reception, she is holding a banquet din- ner at Butterfly Creek tomorrow night to raise awareness and funds for fam- ilies suffering from Hunting- ton s disease. Ms Knox lost her grand- father to the degenerative disease that leads to dementia. Her mother, aunty and uncle also have it. You just have to make good out of the situation, she says. The sports co-ordinator is optimistic despite her wed- ding falling through and says organising the event is some- thing she s had in the back of her mind for five years. Ms Knox has already raised much of her $10,000 target and has been overwhelmed by the support she s received. Only 18 people had signed up for the evening last week but after friends made a few phone calls, the number has jumped to almost 100. She has also been able to get netball star and Common- wealth Games gold medallist Temepara George to come along as a guest speaker and Dame Kiri te Kanawa s pian- ist will entertain diners. The evening s focus will be on supporting families who are dealing with the illness instead of trying to find a cure. Huntington s disease is genetic but fortunately when Ms Knox was tested her results came back negative which means she can t pass it on.Auckland Huntington s Disease Association family co-ordinator Jo Dysart says research is always being undertaken but it is import- ant to offer support to those dealing with the disease. Because of the nature of Huntington s, we walk the journey with our families, she says. Around 311 people show symptoms of the disease in the Auckland and Northland region. The association looks after 3000 people in the same area who are affected by it in some way. Ms Dysart says she is blown away by Ms Knox s idea. I m personally absolutely humbled. It s not just about the money for Leanne, for her it s about having a positive attitude and approach towards dealing with Huntin- gton s and helping families affected by it. All proceeds from the even- ing will go to the association. Visit www.hdauckland. org.nz. Scan foe stuck in London An Auckland man has been held up at Heathrow Airport after refusing a body scan. James Holder was selected at random for additional security screening after walking through the metal detec- tor without disruption on Wednesday. The body scan can detect weapons and explosive devices concealed on the body by creating a naked image of the subject. The machines pur- pose is to strengthen London Heathrow s security but they are raising a barrage of human rights issues. The Greenlane resi- dent refused the scan based on the principle thatitisasteptoofarin personal invasion. It s the principle that gets me. Some dodgy- looking security officer inspecting my nude body on the screen magnify- ing areas that are of interest. What happens if they make this the standard procedure? He says he was happy to be strip-searched and patted down but UK air- port security told him that was no longer a choice. I offered but it s apparently the body scanner or nothing. The law, it seems, offers no rights to another option. Mr Holder says because of his unwilling- ness to comply he cannot leave for New Zealand until officials allow him through security again. The scanners were deployed at Heathrow and Manchester airports in February after a failed 2009 Christmas Day bombing attempt. They are being tested for further implemen- tation.
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